Thursday, March 31, 2011

Update

Thanks for the well wishes and prayers!! I was going to go visit my brother yesterday but I called when I was headed up there and they had just taken him downstairs for a spinal tap and a MRI. So I told Plain Jane I'd come up there tonight. The good news is he's not in any pain. I guess all the docs are leaning to the Gillian-Barre but we won't get the test results back until today. If that's what it is he'll have to be in the hosp for probably another 5 days so they can give him his treatments via IV. Basically it started Sat that his feet felt numb - like they went to sleep but without the pins and needles. Between Sat and Tues its gotten worse and now the numbness is up to the top of his knee. So its hard to walk, his feet kinda drag. I guess they're kinda like dead weight? The longer you wait to get treatment, the farther up it goes. He can make a full recovery, but he might have some weakness afterwards. Its an autoimmune neuropathy so he could get episodes periodically. Apparently you usually get an episode after getting over any kind of viral infection. And sure enough, he was sick about 3 weeks ago. So this is all what I've gotten online and from Plain Jane's mom who is a RN. I'm eager to hear what the actual doc says about it when we get the results back today. Apparently, the docs at the hospital he's at said they haven't seen a case in about 20 years. So maybe its really rare? Guess autoimmune stuff is definitely strong in our family. He has this, I have Hashis and at least 1 cousin has Crohns - all autoimmune. I'll post an update when we hear back from the doc and after I visit him tonight. My mom said he's in good spirits, just antsy to get out of there. But he's probably got another week in there. I know he's going to hate hearing that! If anyone knows anyone who's had this, I'd love to hear about it.

1 comment:

  1. I don't know anyone that has had that, but I'm sending prayers and well wishes that your brother will be better soon!

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